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Celiac Cruise

Bahamas - October 8-12 2020
Europe - March 15-21, 2021
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To amend the Federal Food, Drug, and Cosmetic Act

On December 11, 2019, Senator Richard Blumenthal [D-CT] introduced S.3021, to the Senate floor. This bill is meant to amend the Federal Food, Drug, and Cosmetic Act to require the label of a drug that is intended for human use and contains an ingredient that is derived directly or indirectly from a gluten-containing grain to identify each such ingredient, and for other purposes. It will also be known as the Gluten in Medicine Disclosure Act of 2019 and uses the same language as H.R. 2074, the bill Representative Tim Ryan [D-OH] introduced to the House in April.

If passed, the bill would amend the Federal Food, Drug, and Cosmetic Act to require gluten be labeled in all medications.

Read the bill.


How You Can Help

Beyond Celiac encourages you to support the Gluten in Medicine Disclosure Act of 2019 by contacting your representatives and encouraging them to cosponsor this bill. A list of those currently cosponsoring this bill can be found here.

1. Call, write, email, or send a message to your Senators and Congressional reps urging them to cosponsor this and the corresponding House bill. Include a personal story.

2. Set up district meetings as Senators are back home during recesses.

3. Attend local events and talk to their your Senators and their staff at the events urging them to cosponsor.

Contact Your Representatives

Download a sample letter for your congressperson written by the staff at Beyond Celiac:



As new developments come to the forefront of the Celiac Disease arena, we will post useful information on this page. 

NANOPARTICLES SHOW PROMISE AS A TREATMENT FOR CELIAC DISEASE

New study suggests gluten could be prevented from triggering the damaging immune reaction

By Amy Ratner, Medical and Science Research News Analyst

A potential treatment for celiac disease in which nanoparticles act like a Trojan horse and carry a hidden component of gluten to reprogram the immune system not to react has shown positive early results in a new clinical trial.

Click here for more
 


Breaking Research from “Microbiota : Therapeutic Implications" In Killarney- 10/11/19

As the “Microbiome: Therapeutic Implications” meeting wraps up in Killarney, Ireland, many hot topics and scientific insights have emerged over the past few days.

One of the highlights that created a lot of buzz on twitter (#KSmicrobiome), was the presentation by Dr. Elena Verdu, of McMaster University in Ontaria, Canada, about how the microbiome influences the development of celiac disease (an autoimmune condition triggered by gluten protein found in wheat and other grains), via metabolism of dietary gluten.

Here we catch up with Dr. Verdu about these revelations regarding the interplay between microbiota, diet and autoimmune disease, and her experiences at this meeting of the minds in Killarney.

https://keypoint.keystonesymposia.org/conference-news/breaking-research-from-microbiota-therapeutic-implications-in-killarney/
 


September 13th is National Celiac Disease Awareness Day, meant to raise awareness for a condition much more common than you thought. Did you know that 1 in 100 people are affected by Celiac Disease worldwide? And becoming aware is crucial — the Celiac Disease Foundation reports that 2.5 million Americans are undiagnosed and at risk for long-term health complications.

https://usmc-mccs.org/articles/celebrating-national-celiac-awareness-day/


The AGA Journal recently published a summary of Can Altering the Intestinal Microbiome Reduce Wheat Sensitivity which was co-authored by some of our members. Read the summary here.

 

Commentary: Safety of Adding Oats to a Gluten-free Diet for Patients with Celiac Disease: Systematic Review and Meta-analysis of Clinical and Observational Studies

Maria Inés Pinto-Sánchez, Natalia Causada-Calo, Premysl Bercik, Alexander C. Ford, Joseph A. Murray, David Armstrong, Carol Semrad, Sonia S. Kupfer, Armin Alaedini, Paul Moayyedi, Daniel A. Leffler, Elena F.  Verdú, Peter Green


It can be difficult to follow a strict gluten-free diet after being diagnosed with celiac disease. Oats, compared to other cereals like wheat, are a source of good quality proteins, vitamins and minerals and they improve palatability and the texture of gluten-free food. For a person diagnosed with celiac disease, adding oats to a gluten-free diet could not only increase food options, but also help them follow a better gluten-free diet and have a higher quality of life. However, issues have been raised regarding potential adverse reactions to oats by celiac patients and this has reduced the enthusiasm of adding oats to the gluten-free diet in many cases. For this reason, SSCD members decided to perform a meta-analysis to evaluate the evidence regarding the safety of adding oats to a gluten-free diet in celiac disease.

The study, published in Gastroenterology (April 18, 2017, article/S0016-5085(17)35474-4), found no evidence that addition of oats to a gluten-free diet affects symptoms or activates celiac disease. However, it is very important to stress that there were few studies in some of the analyses, the quality of the studies was low and most of them were conducted outside of North America. This means that although the [general] consensus is that pure (not contaminated with gluten) oats are safe for most patients with celiac disease, contamination with other cereal sources that may contain gluten, needs to be avoided. The purity of oats will depend on the country of origin and local regulations and, therefore, we were surprised to see that most recommendations in North America are still based on studies performed in Europe. The study raises the need for well-controlled studies in North America, using locally sourced oats.
 


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SSCD is comprised of a diverse group of medical professionals dedicated to finding ways to treat Celiac Disease that will improve the quality of life for patients.